Real World Value: Advancing Payer Understanding of RWE in Rare Disease
Drug developers and regulators are expanding the use of real world evidence to design, test and review rare disease treatments. But market access challenges persist as payers in the U.S. and Europe continue to express doubts. A new survey sheds light on the perception gap. A striking life sciences trend has come into focus the […]
Life in the Lab | Women in ScienceâSeptember 2019
Contributions to keep celebrating Whether they were the first to break down barriers or win a Nobel Prize, women have been essential to the advancement of science, technology, engineering, and mathematics. Their contributions have changed the world and itâs only just beginning. Featured articles Championing women in science Meet some of the women in science […]
RARE Science Donated 200 RARE Bears to Local Kids with Physical Deformities
RARE Science, an all-volunteer San Diego nonprofit dedicated to accelerating diagnosis and therapeutic development for kids with rare disease, gifted 200 RARE Bears to local nonprofit Fresh Start Surgical Gifts through its RARE Bear Program created to raise awareness for childrenâs rare disease. Fresh Start provides free-of-cost reconstructive surgery for kids with physical deformities and […]
RARE Bear Army Newsletter, Vol. 1 No. 4 November 2018
RARE Bear Army Newsletter, Vol. 1 No. 3 July 2018
RARE Science on UT Radio
Christina Waters, CEO and Founder of RARE Science, Inc., talks about her organizationâs mission to help the millions of kids around the world that have been diagnosed with a rare disease. RARE Science unites rare families globally through its popular RARE Bear Program that builds awareness of particular rare diseases. http://traffic.libsyn.com/utsandiego/css5052518.mp3 05/29/18 San Diego Rescue […]
RARE Bear Army Newsletter, Vol. 1 No. 2 April 2018
Dr. Christina Waters on how DNA is the common language for #EveryRare Disease
Dr. Christina Waters outlines her vision for sharing global genomic data to better diagnose and treat rare diseases. Rare disease touches families all over the world. We aim to overcome geographic boundaries, lower the barrier of access to genomics, shorten diagnostic odysseys, and accelerate new treatments for #EveryRare disease. âKids with rare diseases urgently need […]
RARE Bear Army Newsletter, Vol. 1 No. 1 January 2018
Rare Disease World Sees New Pioneer
Her name is Christina Waters, and she is the founder and CEO of Rare Science, a California non-profit whose mission objective is to aid children and families of rare disease and to help find a diagnosis and treatment. She has now become part of the team at genomics firm Wuxi NextCODE as senior VP, and her focus […]
