Founder of nonprofit lands at WuXi NextCODE for rare disease push
Christina Waters, Ph.D., is the founder and CEO of Rare Science, a California-based nonprofit that helps children with rare diseases and their families find diagnoses and treatments. She has now joined genomics firm WuXi NextCODE as senior VP, focusing on its rare disease programs. Her responsibilities will still include using networks and social media to […]
RARE Bear Army Newsletter, Vol. 1 No. 1 October 2017
BEAR-NINA SEW-INS
This year we introduced you to Christina “Chris” Waters, the president, CEO and Founder of RARE Science. Chris is a delight to work with. She’s incredibly smart, full of energy, and passionate about the work her organization has been doing to find therapies and resources for children stricken with rare diseases. BERNINA shares in Chris’ […]
BERNINA of America Partners With RARE Science to Host RARE BEAR-NINA Events
Attendees will have the opportunity to make a RARE Bear that will be donated to children with rare diseases. Read More Here ..
Pushback on Rare Drug Prices: Not So Rare After All
There’s no doubt the “pricing crisis,” has taken a heavy toll on the reputation of the biopharmaceutical industry. The very industry that strives to improve and save peoples’ lives is at the center of a maelstrom of complaints about affordability and access to medicines.
Medical professionals provide improved patient care through AI
Computer-based systems that incorporate AI techniques are projected to have a dramatic impact in health care, helping physicians better diagnose and treat their patients.
Spring Into Action at the 2nd Annual RARE Bear Sew-In
Last year, the Spoonflower community came together for the first ever International RARE Bear Sew-in supporting RARE Science, and you blew us away with your generosity! We are excited to announce that on March 18th, Spoonflower will be hosting our 2nd annual International RARE Bear sew-in for the one-of-a-kind children supported by RARE Science. It’s […]
Meeting the scientists who are turning their daughter’s cells into a research tool
There’s nothing like a face-to-face meeting to really get to know someone. And when the life of someone you love is in the hands of that person, then it’s a meeting that comes packed with emotion and importance. Read the full article here ..
Patient Advocate Leads Drive to Add Rare Diseases to CIRM’s Stem Cell Bank
Oakland, CA – Christina Waters is a rare kind of person: creative, compassionate, and committed to creating change. Now she is using those rare talents to help children battling rare diseases. She is helping add blood and skin samples from these children to be turned into stem cells and used as a resource for researchers […]
Support the Rare Bear Army !
My name is Christina Waters and I am a medical geneticist. Through personal passion and commitment to health and wellness of children, I started a volunteer based non-profit called RARE Science which has an innovative, laser focus to accelerate finding therapies for undiagnosed and rare disease kids. The RARE Science Team does this by empowering patient […]
